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Take Part in a Penile Cancer Research Study 

Opportunity to Get Involved in a Penile Cancer Research Study with Leeds Metropolitan University 

Orchid has joined a team of researchers at Leeds Metropolitan University examining men’s experiences of treatment for penile cancer. Together with the University of Oxford, Aberystwyth University, Leeds Teaching Hospitals NHS Trust and a penile cancer patient we are working with researchers from The Centre for Men’s Health in Leeds, in conducting a qualitative research study using one to one recorded interviews. The aim of the research is to improve our understanding of patients lived experiences of treatment for penile cancer, gaining real insight into what issues affect men diagnosed with the condition the most.

How is the Research Being Conducted?

The study is a patient-led study, involving men diagnosed and treated for penile cancer at each stage of the research. The research is being overseen by renowned artist and penile cancer patient, John Edwards. The study employs one-to-one narrative interviewing techniques to gain insight into the diverse range of patients’ stories. Patients will be given the option for their interviews to be recorded, using either digital audio equipment or video equipment. These interviews will be analysed be a team of skilled researchers and themes representing the range of different experiences identified.

Health Talk Online

Findings from the study will feed into the health talk online web resource (www.healthtalkonline.org) - formerly known as DIPEx - a website which provides access to over 2,000 people’s experiences of health and illness. The website provides the user with a unique insight into people’s lived experiences, enabling patients, their friends and families to benefit from the lived experiences of others.  

How can I get involved?

The research team are currently recruiting men of all ages, backgrounds and treatment experiences to the study. If you have been treated for penile cancer, work with penile cancer patients or have an interest in the study please contact Karl Witty on:  0113 8121968 or k.witty@leedsmet.ac.uk